Special Bulletin Board

The purpose of this bulletin board is to inform parents of special needs children and young adults about community activities, events and programs.  It is also a place to learn about special assistance programs  that become available at different times of the year. 

Parents and organizations raising funds for the benefit of children with special needs may also use this page to inform the public of their activities and special requests by clicking on the link below.

Healthcare professionals in search of participants for studies can use this page to provide information regarding their research and criteria for participation.

RECREATION PROGRAM

The Recreation Activity Program for Adults with Disabilities (RAPAD) is a program designed by the FDOA funded through a grant by the Department of Vocational Rehabilitation to stimulate and educate persons with disabilities on the opportunities available in sports, recreation and leisure.  FDOA works with each person individually to remove barriers to participating in active leisure with the goal of increased independence.

The RAPAD programs assist people in developing personal recreation goals.  Opportunities exist for group outings as well as individual activities.  Some of the past activities include:  Social Gatherings; Rafting; Sky Diving; Wheelchair Tennis; Power Soccer; Kayaking and many more.

If you know someone 18 years or older that may be interested in this program, please have them contact us the FDOA by email to info@fdoa.org or 850-668-7323 or 850-201-2944.

Laurie LaRe, Deputy Executive Director, Florida Disabled Outdoors Association (FDOA).  http://www.fdoa.org

STUDIES

Language development of children with autism

Looking for children with autism to participate in a study that will examine the effects of training in the use of vocal/gestural imitation on vocabulary development.

Your child may be eligible for this study if she/he:

- is between 3 and 8 years of age

- has been diagnosed with autism

-is delayed in language development (i.e. producing less than 50 words)

If you child participates in this study, you child will receive training by a team of researchers three times per week for 12 weeks (30 - 45 minutes per session).

If you are interested in having your child participate in this study, please call:

HyeKyeung (HK) Seung, Ph.D., CCC-SLP (phone: 352-273-6172; email: hkseung@phhp.ufl.edu) or M. Jeffrey Farrar, Ph.D., (phone: 352-392-0601 x217; email: farrar@ufl.edu)

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Parent Stress - Raising a Child with Autism

Looking for parents who have a child with autism to participate in a short study on parent stress.

You may be eligible for this study if you:

- Are 18 years of age or older

- Have a least one child who has been diagnosed with autism and is between 2 and 10 years of age

- Have at least one child with autism who has been receiving therapy for at least one year

If you participate in this study you will be asked to:

- Fill out an anonymous general questionnaire about your child's diagnosis and therapy

- Fill out an anonymous Parent Stress Index questionnaire

If you are interested, please call Crista Seipp at 352-514-6054 or send an email to cristas@ufl.edu 

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Preschoolers:  Motor and Cognition Study (Radonovich)

- children with autism

- children with non-specific developmental disabilities

- children with typical development

2 to 8 years of age

- no known genetic/medical conditions (e.g., fragile X syndrome; tuberous sclerosis; seizures) as confirmed by medical records/examinations;

- no known sensory deficits (not blind or deaf)

- ambulatory with no significant physical impairments

-MEDICATIONS ARE OKAY!

Children may be currently enrolled in medication and behavioral treatments.

Older Children:  Repetitive Motor Behavior Study (Lewis & Radonovich)

- children with autism

- children with non-specific developmental disabilities

- children with typical development

8 to 16 years of age

- no known genetic/medical conditions (e.g., fragile X syndrome; tuberous sclerosis; seizures) as confirmed by medical records/examinations

- no known sensory deficits (not blind or deaf)

- ambulatory with no significant physical impairments

- not currently (past 3 months prior to testing) taking anti-psychotic/dopamine-blocking medications - we may take out this requirement

Children may be currently enrolled in medication and behavioral treatments.

We plan to begin a motor treatment study by next Spring or Summer based on preliminary findings from this data

For either study, please call Dr. Krestin Radonovich at 352-392-7928

 

TRAINING DOLLARS

The Family Cafe and The Florida Developmental Disabilities Council Announce A New Funding Program

(Scroll down for Spanish version)

Dear Friend,

Have you ever wanted to attend a conference, training, town hall meeting or other forum but didn’t have the financial resources to make it happen?  Now, thanks to generous funding from the Florida Developmental Disabilities Council, The Family Café can help.

The Family Café is proud to announce the beginning of the Consumers and Families Leadership and Development Assistance Program. This program has been designed to provide funding for individuals with developmental disabilities and their families to attend conferences, public forums and other training opportunities in order to help them become effective advocates and community leaders. Funding is available to pay for travel, accommodation, conference registration fees and other related costs.

If you’ve always wanted to participate, but lacked the resources to do so, this

program is for you! All you have to do is apply.

To learn more about the Consumers and Families Leadership and Development Assistance Program, or to complete an application, visit The Family Café website at http://www.familycafe.net. You can also apply by phone at 1-888-309-CAFÉ (2233).

Yours,

The Family Café

 

Estimado amigo

Tienen deseó de  atender a la conferencia, al entrenamiento, a la reunión del pasillo de ciudad o al otro foro pero no tienes siempre los recursos financieros para hacer que sucede? Ahora, gracias al financiamiento abundante del consejo de desarrollo de las inhabilidades de la Florida , el café de la familia puede ayudarnos.

El café de la familia esta orgulloso en anunciar el principio de la dirección de los consumidores y de las familias y del programa de la ayuda de desarrollo. Este programa se ha diseñado para proporcionar el financiamiento para los individuos de los disabilites de desarrollo y sus familias para atender a la conferencia, a los foros públicos y al otro de las oportunidades de entrenamiento para ellos hacen abogados y líderes eficaces de la comunidad. El financiamiento está disponible para pagar la comodidad de recorrido, honorarios de registro de la conferencia y otros costos relacionados.

Si usted tiene deseó siempre de participar, sino carecer los recursos para hacer así pues, este programa está para usted! todo lo que usted tiene que hacer es aplicar aprende más sobre la dirección de los consumidores y de las familias y el programa de la ayuda del desarrollo asistente del programa, o para completar una aplicacion, visite  a la pagina de la internet el cafe de la familia www.familycafe.net. Tambien puedes aplicar por telefono 1-888-309CAFE(2233).

Sinceramente

El Cafe de la Familia  

 

TRAINING STIPENDS FROM FND FOR PERSONS WITH DISABILITIES OR THEIR FAMILY MEMBERS

Once again, the Florida Developmental Disabilities Council, Inc. has contracted with the Florida Network on Disabilities (FND) to provide Financial Assistance for self-advocates and/or family members to attend conferences and other leadership development activities.  These may be either in-state or out-of-state events.  Stipends of $600.00 for an in-state or $1,200.00 for an out of state conference are available.  Eligible applicants include persons with disabilities or family members of an individual with a disability. For more information, guidelines, and applications contact Florida Network on Disabilities online at http://www.fndfl.org and go to the Conference and Training Financial Assistance Fund link.

 

 

Click here to send your information to us as soon as possible so that we can put you in touch with each other.

 

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